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LATEST NEWS

Please let us know of any news or events happening in your area which may be of interest to our members.

Submit your news to: complexcaregroup@xtra.co.nz

Rare Disorders NZ made a submission to make Trikafta available to New Zealanders with Cystic Fibrosis:

Read more about their submission here RDNZ | RDNZ’s feedback on the proposal to fund Trikafta for people wih cystic fibrosis (raredisorders.org.nz)

Rare Disorders NZ made a submission on the Ministry of Health’s ‘Precision Health: Exploring opportunities and challenges to predict, prevent, diagnose and treat more precisely in Aotearoa NZ.’

Read more about their submission here https://www.raredisorders.org.nz/about-us/news/rdnz-makes-submission-on-precision-health-consultation/?fbclid=IwAR3hqv2EvxRueUbgjikSyjedlezIYFfi8zbLPzzsU1dxnLH1F4vZb3OOoTM

Review of Protection of Personal and Property Rights Act 1988 – release of Law Commission’s Preliminary Issues Paper

Please see below update from the Law Commission regarding their work on the review of the Protection of Personal and Property Rights Act 1988 and the release of their Preliminary Issues Paper.    Kia ora koutou I’m very pleased to let you know that we have published our Preliminary Issues Paper (PIP) and our consultation […]

COVID Disability Helpline

FROM WHAIKAHA MINISTRY OF DISABLED PEOPLE   The dedicated COVID-19 Disability Helpline is available 24 hours a day, 7 days a week. Call free on 0800 11 12 13. Text 8988. Or access it with the New Zealand Relay Service at www.nzrelay.co.nz   The helpline can provide: – Help or information about vaccines, testing, face […]

Whaikaha Ministry of Disabled People Announces Flexibility to Pay Family Members Using Carer Support and/or Individualised Funding is Permanent:

Whaikaha is pleased to confirm that its more flexible approach for disabled people to engage family, whānau and aiga to provide supports is here to stay.   When other household whānau members can provide support for disabled people, it financially recognises their mahi aroha, work performed out of love, and makes it easier to ensure […]